I have been a social media baby for as long as I can remember. I have also had psoriasis for as long as I can remember. It’s part of me. Years ago I would post about my struggles with my disease and my daily struggles. Someone responded to me and said is this all you have to talk about is your disease? Don’t you think someone that has cancer is going through way more than you are? I felt like I had been hit in the face with a brick and didn’t know what to say. I did realize at that moment that people don’t have a clue of our daily struggles and they really don’t care. This did not stop me from posting on my page, but it opens up a door for me to look for people who understood me. I starting researching community psoriasis sites.
Benefits of social media
Social media is a great platform where we can connect to family, friends and even get acquainted with people from all walks of life, all over the world. You can stay informed about trending topics or breaking news, you can buy and sell products or even participate in social activities. You have Facebook, Twitter and Instagram and all these networks provide means to connect socially. We love to share pictures of our food, what we’re doing and sometimes even give opinions on how we feel about the world today. It’s a great outlet to keep in touch and even vent your daily frustrations.
What you probably won’t see is someone with psoriasis talking about a flare-up or how bad the flakes are in places they don’t want to mention on your social media page. When dealing with psoriasis, it’s hard to be publicly open about that kind of private struggles that we deal with daily. Yes, there may be that one person who is brave or bold enough to talk about their daily battle but I doubt they get really detailed about the grit that comes with having psoriasis. No matter how much we shy away from our psoriasis, most of us don’t totally feel comfortable sharing the details through posts that could land between cute puppy videos and dinner recipes.
Finding support in psoriasis communities
There is good news for all my psoriasis family out there! There are some great sites that you can visit for people with psoriasis. I’m not sure I can list any names here; so I won’t. Some of these online community sites are fun, interactive and totally supportive. They are dedicated to the mission of changing the way we cope with psoriasis daily. You can be completely open and feel safe at the same time. You can vent how you’re feeling to other people around the world who are dealing with the exact same thing. There are no judgments; everyone is understanding and positive but best of all it’s a great place to share tips or stories. Psoriasis sites are the perfect forum to scream out about a flare-up or someone looking at you funny or even when you don’t have enough strength to get out of bed. You can be real honest and many people come seeking advice or help with psoriasis related topics.
I am a member of a community that has over 10,000 members and is growing daily. This site is very user-friendly and you can browse various topics or feelings and find likeminded people to start sharing with.
Anyone who has psoriasis knows a great support system is key to managing stress, emotions and even dealing with unexpected curveballs psoriasis can throw your way. You don’t want to skip on being a part of an online psoriasis community that is completely dedicated to people with psoriasis. You also don’t want to miss out on an opportunity to make a difference in someone else’s life. You could have priceless information and an optimistic energy that could greatly benefit someone new to their journey with psoriasis, remember we are all at different stages with our psoriasis battle. Share your story with the world.