My Story to WRITE and Make It RIGHT
I have often thought about writing my story over the years and telling it to others, but who would I tell it too? There was a time in my life that I would not have given a thought to writing about psoriasis and psoriatic arthritis. Now, I want to tell and share my story while I’m able to. I have always been a person who always wanted things to be just right. I have been living my entire life with psoriasis and feel it’s my right to tell my story to help others. It just seems the right thing to do.
When I was diagnosed with psoriatic arthritis around 10 years ago. I knew I had to put my story out there. It took 25 years for me to get properly diagnosed. I was even more frustrated at not getting the right treatment for psoriasis my whole life. How can you go to dermatologists for over 45 years of your life and be totally covered from head to toe? Yes, I need to write my story.
Fight and write
A person can only fail if they stop trying. I have psoriatic arthritis in my hands which is making it harder and harder to write, but I have started depending on modern technology more and more. There are times that it takes forever to write a paragraph. I have to stop, take a break but I keep moving forward. There are days that the swelling in my hands is so bad that I can hardly hold a pen. My joints stiffen to the point where I can’t open my hands. This will not stop me.
I have said this many times before. I tell my story to inspire, not for pity. I believe no one can write my story like I can because I am the one suffering and the one that has had to endure this struggle. I don't believe people can imagine the agony of this disease unless they have walked in my shoes. This is why I allow the world to see the true me. It brings such joy over my life to share this with others that never knew my story.
The right path for me
I have been an advocate for psoriasis and psoriatic arthritis for years. I try to encourage people to come out and talk about themselves and let them know they don’t have to suffer in silence. People feel that it’s a waste of time to put themselves out there and nothing will change anyway. This, of course, is not true. I know for me that when I write that I am exposing myself, but it helps me to feel empowered. People tell me, thank you for sharing your story Diane; I had no idea that you have had to go through that. I know that as long as I talk about my journey that I am giving so much information to others and hope to encourage them as well. I like educating others from all walks of life.
Living with psoriasis and psoriatic arthritis is not an easy journey. As I've shared so many times, there's no cover up, no pretending, and there is no getting around it. It is what it is. My right to write has become a privilege to me. This is my purpose: to give back with each sentence. I want to help relieve the sufferings of others and educate along the way. I will always look forward; no matter if my fingers become stiffened or if I can’t move my wrists at times.
Yes, it is my right to write my story and to educate others. This feels like the right thing to do. I would like every psoriasis and psoriatic arthritis patient to write their own story. We all have something to say. I will always try to be right and continue to write my story.
How often do you experience brain fog?