The Value of a Great Support System

Psoriasis can make us feel like pariahs – like no one understands what it’s like to be us. Having a support system to fall back on can be a lifeline in a lot of ways. In March of 2016, I read an email invitation from the National Psoriasis Foundation (NPF) that turned out to be a life-changing decision-to attend Psoriasis Day at the FDA. Until that time, I had not really known anyone personally (or so I thought) who had Psoriasis. Attending the meet and greet the night before the FDA event, and then the event itself, being in a room full of people who were “like me,” who have looked like me, suffered like me, been LOOKED AT like me, it was an incredibly empowering experience. I made life long friends over that day and a half, and also began volunteering and mentoring, which is so fulfilling.

My family is amazingly supportive, and I would never trade them for anything. They are my rocks. They support me and stand up for me, and let me cry on their shoulders when someone hurts my feelings. They hurt for me. What they can’t feel is the incredible itching, the burning, the overwhelming fatigue that comes with the territory. The frustration of treatments that don’t work, flakey scalps, cleaning up the flakes we leave behind…I could go on and on. This is where shared experience comes in.

My mentee’s thank me for giving them time, talking to them and listening to them. They are all so surprised when I tell them that they help me as much as I am helping them. We all need someone to talk to, someone who’s not afraid to hug us or hold our hand, who has actually shared the same experiences we have.

There is an immediate bond when fellow Psoriatic’s meet. We start sharing our stories, and the next thing you know, we have exchanged phone numbers, emails, Facebook and Twitter handles along with breakfast and lunch. It is a truly amazing experience. And you can never have too many friends who are willing to brush your flakes off the table!!!

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The PlaquePsoriasis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (3)
  • RebeccaB moderator
    2 years ago

    @Tamisuewho – isn’t it crazy how it take take so long to get to where we “need” to be and then it seems like we were surrounded by it the whole time and just didn’t know?

  • RebeccaB moderator
    2 years ago

    Tamisuewho – what a wonderful story — the feeling of validation one gets when finding someone who truly “gets it” is like no other. Thank you for sharing and I hope others are encouraged to reach out to others and create a support system like yours!

  • Tamisuewho author
    2 years ago

    Thanks so much, Rebecca! It only took me 20 years and a trip to the FDA to figure this out! Lol! What is very surprising is that, since I have “come out”, I have found that some of my friends also have Psoriasis, and they were hiding as well!

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