A Patient Voice in Clinical Trial Development?
Last updated: September 2023
As many of you may already know, a clinical trial is a research study that tests how safe and effective a new treatment, diagnostic test, or other medical intervention is. This type of medical research is often started in a laboratory and sometimes tested on animals. Clinical trials in humans are one of the final stages of this research to ensure everything works as the researchers had intended.
But there are many parts to the design and planning of a clinical trial, which begs the question:
Should patients be involved in the planning of clinical trials?
And if so, where do you think patient feedback could have the biggest impact on how research is conducted?
Help us gain a better understanding of this topic by answering the following poll questions:
Have you participated in a clinical trial?
What would (or has) motivated you to participate in a clinical trial? (select up to 4)
Do you think patients should be involved in the design, planning and review of clinical trials? (For instance, providing input on study goals, number of office visits, types/frequency of tests, etc)
Would knowing that patients were involved in the design and review of a clinical trial affect your likelihood to participate?
Which parts of the clinical trial design process do you think patients should be most involved in, if any? (select up to 4)
How interested are you in participating in the clinical trial design process?
Which of the following would motivate you the most to participate in the clinical trial design process? (select up to 4)
Thank you so much for sharing your perspective! Feel free to provide additional thoughts and experiences in the comments below!
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