Emotional Toll of Psoriasis
I’m a 58 year-old woman and I don’t think there was ever a day in my first 45 years of life that I didn’t feel bad or worthless. I used to be angry all the time in my earlier years but always held it in. Crying on the inside, but smiling on the outside. It was extremely difficult living with a body covered with the scales of psoriasis; people didn’t understand and were frightened by what they saw.
Feeling shut off from the world
I remember as a teenager wanting to hold a relative’s baby, she didn’t say no, but I could almost see terror and fear in her eyes. I was 13 at the time. I remember asking friends if I could help them cook. They would always refuse. I sometimes felt like people were avoiding me. I used to ride the train a lot and have lost count of the times people have moved away from me.
I was very active as a teenager. I was on the track team and even tried out to be a cheerleader. But I gave up both because showing my skin was too much for me to bear. I would have rather died than for anyone to look at me. I was already an outcast and the idea of having a group of my peers shun me when they saw my skin made me feel utterly hopeless.
Leading to depression
When I was in my early 20’s I went to see a psychologist because I was depressed. It’s funny now when I think how my having psoriasis or psoriatic arthritis never entered the conversation. Couldn’t being covered with scales my whole life make me angry and frustrated and cause a lack of confidence and my not wanting to be around people? Maybe even depressed?
When people first met me they never saw my kind heart. I was clean, well-dressed and well-mannered. The only thing people saw were my scales. I knew what it literally felt like to be treated like a leper. Psoriasis made me feel alone and like I was the only person on this earth. People shunned me and I had to deal with my emotions all by myself.
But then as I got older, when people would pull away or make remarks, I didn’t shy away with hurt feelings. I would explain to them that I was not contagious and that I have had this disease my whole life. I think that educating myself and others is the key to acceptance and to one day finding a cure for us.
Healing emotional scars
When I finally started getting the proper treatment to clear my skin, I still didn’t felt like I was part of the group. I had so many psychological scars to heal. Having psoriasis brings on lots of anger, and I had a lot of anger. When I did get the courage to speak to someone about my feelings, they told me I was crying on the inside and laughing on the outside. That was definitely me.
If you feel like your psoriasis is ruining your life and making you miserable, try to seek professional help, talk to friends, family or join a support group network. The one thing I have learned in past few years is talking to someone helps. This is part of my healing process.
I feel I have so much to share with the world; remember we are not alone in this fight. One thing I have said my whole life; you will never understand my struggle unless you have walked a mile in my shoes. I know that ignorance of this disease is hard to overcome but letting people know how we feel is the first step.
How often do you experience brain fog?