Psoriasis Support Groups and Websites
Psoriasis can be a lonely condition, but it doesn't mean we are alone. Because guess what? An estimated 7.55 million US adults with psoriasis.1 While psoriasis can be isolating and painful, a small semblance of connection and support can help us feel seen, heard, and less alone.
Support can help improve how we feel about ourselves and our condition.
A look at the psoriasis support groups waiting for you...
Chronic psoriasis is more than just physical symptoms. Internally and emotionally, psoriasis causes stress, low self-esteem, anxiety, and depression. It's been proven that cognitive-behavioral therapy and support groups have a positive effect on how individuals approach their psoriasis treatment.
Support groups and individual connections can reduce stress and improve emotional control. This type of emotional support can lead to acceptance of the disease and improve the quality of life of the patient.2 If you're looking for support, I've outlined a few options below. You're bound to find validation in one of these.
There are plenty of websites out there, but here are a few that I can personally say have helped me. They have resources, real patient account stories, and opportunities for you to share your own unique story.
The National Psoriasis Foundation
It all started in 1966 when a 30-year-old woman suffering from a severe case of psoriasis asked her husband, Larry, for help. She told him that she only wanted for her 30th birthday was to talk to other people with psoriasis. Larry placed an ad in the local paper on Beverly’s birthday to find that support for his wife.
Within a week, Beverly received more than 100 phone calls. She began organizing meetings and formed the Psoriasis Society of Oregon (now NPF). The National Psoriasis Foundation has a special place in my heart. After being diagnosed almost 10 years ago, this foundation really helped me come out of my spotty little shell.
The NPF invited me to be a part of their amazing organization as an advocate. This allowed me to meet so many people who were just like me. Suddenly, I felt less alone in my struggles. On their website, you can find information on your disease, treatment information, and the same peer connections that helped me so much.
Talk Psoriasis:Twill Care
As an official partner of the National Psoriasis Foundation, Twill Care gets my stamp of approval. Twill Care puts all the resources you could need at your fingertips, providing tools, information, and tips from experts and others like you.
Once you sign up, you can access an entire community of support. Share your ups and downs with others who know what you’re going through. You can also connect with board-certified medical experts for information on the latest treatments, track your symptoms, and stay informed with articles.
For support, knowledge, and tools, Twill Care is definitely a one-stop shop.
Last but certainly not least, in the support website category, this site! PlaquePsoriasis.com offers a plethora of information on psoriasis. Here, there’s no shortage of articles written by peers relating to your struggles.
There’s also information that helps you understand your disease, forums to chat with an entire community of psoriasis peeps, treatment information, and health resources. This is my go-to when I’m looking to be understood and want to find like-minded people.
Does the thought of community websites overwhelm you? Where should you turn first? What resource should I click on? Where do I ask a question? Well, maybe advocate blogs are more your speed. These are run and operated by individuals living with psoriasis. These advocate blogs share resources and shared experiences.
New Yorker Todd Bello was diagnosed with psoriasis at the age of 28. It was in his 30s that he started OvercomingPsoriasis.com to help others by offering advice and emotional support. His blog is filled with articles on treatments, announcements of psoriasis-related events, and some entertaining posts.
You can also chat with members of the Overcoming Psoriasis tribe on his Facebook page.
Psoriasis superhero Alisha Bridges sheds light on her disease with honesty and humor. This makes sense since she also moonlights as a stand-up comedian. Her personal navigation through her diagnosis is inspiring, and she shares every bit with you.
Alisha’s blog isn’t entirely filled with psoriasis information, though. It’s also sprinkled with some personal and entertaining stories to lighten the mood and relate to her as a person. When I was diagnosed nearly 10 years ago, finding information about psoriasis was hard.
When I was at my lowest, and it felt like there was no one who understood what I was going through, I found Alisha’s blog. Finally, there was someone who “got it”. Her blogs weren’t all doom and gloom; they were uplifting and made me feel like it would be okay. So if you need somewhere to feel at home, AlishaMBridges.com is the place to go.
Joni Kazantzis is not just a girl with spots; she’s much more. Diagnosed with psoriasis at 15, Joni had quite a bumpy and spotty road ahead of her. As she got older, she decided to use her voice and experience to help others.
“I wanted to be the person I needed when I was first diagnosed,” says Joni. “Someone who understood the physical and emotional pain I was going through and who could help share personal experiences to hopefully make someone else’s journey easier.”
Joni shares her personal journey with psoriasis in an informative and fun way. She offers tips on navigating the world with psoriasis, remedies on how to treat it, and even guest posts from peers. Joni’s blog makes you feel like a new friend with her relatable stories and warm words. For a new spotty friend, visit justagirlwithspots.com.
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