Strategies for Talking About Psoriasis
Psoriasis is a visible condition. That means the outside world can directly see the symptoms on the outside of our bodies. Having exterior symptoms that catch people's eye seems to give them unwarranted permission to comment, ask questions and seemingly forget that the person they are looking at, is just that, a person.
While most people manage insecurities on the inside, those with psoriasis live it on the outside. While people have a right to be curious, they do not have a right to lack self-awareness.
Why is talking about psoriasis important?
So, conversations about visible psoriasis symptoms are inevitable. We're not only doomed to face our insecurities but discuss them with loved ones and even strangers. While psoriasis awareness has come a long way there are some painful stigmas and hurtful myths attached to this autoimmune chronic condition.
Even if it's just one person, sometimes it takes an informed and engaging discussion to honor the psoriasis journey and eliminate any hurtful confusion.
Tips to get the discussion going
You may not always want to talk about psoriasis or commit to its advocacy - and that's not only allowed but encouraged. Your condition does not define you.
Consider having rehearsed answers on reserve for different situations can help, including for the conversations where you just may not be feeling it. And when you are feeling ready to have a conversation and share? We encourage you to follow the tips below.
Know more than just the basics of psoriasis. Go even further and provide context on exactly what an autoimmune condition is. Share about disease progression and trigger management. Not only will these be helpful in one-off conversations but advocating for yourself at your doctor appointments. Arm yourself with researched information.
Sharing the truth is the bravest thing you can do. Take the time, to be honest with yourself. How do these physical symptoms make you feel? What do you wish you could change about managing life with this chronic condition? Honesty won't give you sympathy, it will allow people to honor your journey and think twice.
Those who don't live with psoriasis have no idea. On the surface, they think it's just itchy skin. Go ahead and change that by offering detailed descriptions and specific examples. Does your skin feel like it's two sizes too small? Does the neverending itch feel like fire mixed with poison ivy? Get creative and put folks in their place.
Psoriasis is a chronic condition with chronic pain. Your aunt may have a few plaques on her elbows but the severity of this condition can range - and there are so many different types. There are comorbidities to consider and severe mental health implications. Psoriasis is a serious life-altering condition.
Living with psoriasis is hard
It is not said enough, but living with psoriasis is hard. It deserves to be validated, recognized, and honored. After all, that's part of what resilience means – the recognition of a painful journey. We encourage you to share your own and become involved here at PlaquePsoriasis.com – all at your own comfort level.
- Share your story. We want to hear about your perspective, challenges, wins, and observations.
- Check out our forums. Feel free to lurk, participate, or submit your own unique question.
- Learn about our patient leaders. These are real individuals behind the screen writing and sharing their own experiences living with psoriasis.
- Sign up for our newsletter. We send weekly emails with our latest content that runs the gamut of managing life with psoriasis.
- Give us a follow on Facebook, Instagram, or Twitter. A community of support is waiting for you.
We look forward to working alongside you and amplifying your own strategies in eliminating the unknown and painful stigmas of psoriasis.
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