45 Year Journey with Psoriasis
My journey with psoriasis began in 1972 at the age of 17, I was working 2 jobs going High School and attending Jr. College, volunteered at a hospital, trying to date. One weekend to rest. So I laid out at the beach got sunburned badly, was bitten by 1,000's of sand fleas. Didn't stop me from Hiking in Joshua Tree. Sunburned on top of the sunburn.
Upon returning home from a weekend of burning the candle from end to end and then some, Monday morning I was sick with 102 fever. Rushed to ER for medical treatment, discovered I had mononucleosis and strep throat. Needless to say, I blew up my immune system. Within three days I was covered in scales head to toe.
I have used every cream- lotion- ointment- light box -sunlamps. In 2012 I began a clinical trial using Talz. I experienced for 4 years 6 months being totally free of psoriasis. Sadly I was told by urologist the medication was causing my bladder and kidneys to be infected and bleed due to sensitivity to the chemicals in the medication. Since stopping the TALZ in February my psoriasis has flared worse than I have ever had before. I have cried - been angry and depressed with how it looks. Covering up so I don't deal with stares, pointing-or hurtful words.
Now I stay away from people - back to being a prisoner in my home. Living with this autoimmune disease is quite the journey. Thank God my husband has my back. He understands when I cry in burning pain, always says I love you for who you are on the inside. It sucks to go from covered in scales to nothing then back to being covered in scales.
Has psoriasis affected your ability to sleep well?