45 Year Journey with Psoriasis

My journey with psoriasis began in 1972 at the age of 17, I was working 2 jobs going High School and attending Jr. College, volunteered at a hospital, trying to date. One weekend to rest. So I laid out at the beach got sunburned badly, was bitten by 1,000’s of sand fleas. Didn’t stop me from Hiking in Joshua Tree. Sunburned on top of the sunburn.

Upon returning home from a weekend of burning the candle from end to end and then some, Monday morning I was sick with 102 fever. Rushed to ER for medical treatment, discovered I had mononucleosis and strep throat. Needless to say, I blew up my immune system. Within three days I was covered in scales head to toe.

I have used every cream- lotion- ointment- light box -sunlamps. In 2012 I began a clinical trial using Talz. I experienced for 4 years 6 months being totally free of psoriasis. Sadly I was told by urologist the medication was causing my bladder and kidneys to be infected and bleed due to sensitivity to the chemicals in the medication. Since stopping the TALZ in February my psoriasis has flared worse than I have ever had before. I have cried – been angry and depressed with how it looks. Covering up so I don’t deal with stares, pointing-or hurtful words.

Now I stay away from people – back to being a prisoner in my home. Living with this autoimmune disease is quite the journey. Thank God my husband has my back. He understands when I cry in burning pain, always says I love you for who you are on the inside. It sucks to go from covered in scales to nothing then back to being covered in scales.

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The PlaquePsoriasis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

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  • Debs60now
    1 year ago

    Boy do I understand about being a prisoner in your own home. I live in Florida and really enjoyed using the pool at my community. Now I don’t go to the pool, but to the beach very early in the morning before other bathers show up. I don’t have people over because my furniture is covered in sheets so I don’t get blood on them or greasy medication. When it’s hot out, I am covered head to toe in clothes so people can’t see the plaques,so I don’t go out much anymore either. The only positive thing I can say is that I shop early in the morning, go to the beach early in the morning, and stores or the beach aren’t crowded. I also pray gloves make a comeback in the fashion world. Your husband sounds like an angel. I hope you find relief, keep praying .

  • RichardF moderator
    1 year ago

    So sorry to hear that you are struggling and had to stop the treatment that had helped you for so long gabbyjane2222. Has your doctor suggested an new course of action? Here is a link to an article from our editorial team on combination therapy: https://plaquepsoriasis.com/clinical/combination-therapy/. I’m including this because it can be an option for those that cannot tolerate the toxicities of the full dose of some medications. I hope you can find some level of relief. Please know that you are always welcome here for support and information. Please keep us posted on how you are doing. Best, Richard (PlaquePsoriasis.com Team)

  • VickiN moderator
    1 year ago

    gabbyjane, what a journey you have been on! I’m so glad that you have a supportive husband, but I totally appreciate just wanting to stay inside and deal with your skin in private. You can come here anytime to lean on us, we understand this path. Sending strength and hugs,
    -Victoria, Community Moderator

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