My Struggle with Misdiagnosis and Psoriasis.
Growing up I always wondered why my skin was so dry and why I had dandruff so bad. No one in my family had dry skin or dandruff. I grew up poor so going to the doctor for dry skin wasn't going to happen. When I was around 19-20 years old I had small scaly circles come up on my arm. I didn't think anything of it until a news report came out about a skin disease that was killing people. Well I got worried and went to the ER. Was told by the doctor that I had psoriasis and it was nothing to be alarmed about.
My psoriasis didn't bother me so I didn't see a doctor about it. To tell you the truth I didn't think that there was any help out there for it. So I just drowned myself in scented lotions that was probably making it worse. I didn't know. LOL!!!
Well, I got married and as a new married couple, we struggled. In more ways than one. I found out that he wasn't very faithful to me. One night I woke up in pain and a little bleeding (from scratching in my sleep) around my private area. I went straight to the ER. The doctor that looked at me took about 5 seconds to tell me that I had herpes. WHAT?!!!! I told her that was impossible. The only person I have been with was my husband. Well, she just gave me a look like "Yeah, Right" So I went home and me and him had some pretty heated words. Long story short I ended up leaving him.
So I just live my life the best I could. Got remarried to a man that wanted me to get help for my psoriasis because it now was a major part of me. Half my face, my hands, feet, creases of my legs--it was everywhere. The creases of my legs were black and smelled like rotten meat. The bottom of my hands and feet hurt so bad and seeped blood and fluid. I was miserable.
I went to see a gynecologist first because I had lost 3 babies. I told him that I was diagnosed with herpes in my early twenties. After blood work and an exam, he told me that I didn't have herpes. That I had psoriasis. I was so shocked. He couldn't believe that a doctor mistook psoriasis for herpes. He set me up with a wonderful dermatologist.
The dermatologist that he set me up with tried everything that he could think of to help my psoriasis. I called myself his guinea pig. I was willing to do just about anything I had to. I was put on Enbrel injection. It worked really good but I stayed sick all the time. So then he put me on Humira. Same outcome. Then he tried me on Methotrexate. Worked GREAT. Took it for a number of years. But had to stop it about a year and a half ago. My blood work was coming back bad. So he decided to try me on another injection--Cosentyx. It worked great too. But had the same outcome that I did with the others. He pretty much told me that his hands were tied. He was at a loss and didn't know what else to do. So he put me in touch with another doctor that he called a guru.
As I went to my first doctor's appointment with the new doctor I was a little down. But it was Halloween and this man came in dress as some kind of Swedish woman. All I could do was laugh. He was awesome. Halloween is one of my favorite holidays so he fit right in. LOL!!!! Fake eyelashes, corset, heels, the works. LOL!!!! I could tell by the way he was rattling off words that I have never heard of that he knew what he was doing. Put me on Stelara injection and a treatment for my hands and feet. I have only been seeing him for 4 months and my psoriasis is doing great. No reactions to this injection and I am praying that I don't have any.
To everyone that has psoriasis. DON'T GIVE UP! Be a guinea pig. See more than one doctor and maybe they can help you together. It took 3 doctors to turn a bad diagnosis into what I have today. Take that extra mile. I travel 3 hours to Dallas to see this Dr. Will he be my last defense? Probably not. LOL!!! I have found out that no matter how much of a handle you think you have on psoriasis that in reality, you don't. It is so much more than skin deep. Good luck.
Does your psoriasis skin feel out of control? How are you managing?