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This Will Probably Be the End

Well, I have had psoriasis for about 30 years. I am 45 now. I have had it just on my elbow for about 10 years but then it started to spread to my knees then to my hands. I was so embarrassed. The worst thing someone ever said was a nurse at a hospital about 10 years ago. I had pneumonia and when the nurse saw my psoriasis, she said to me, “Why don’t you get a job and get insurance so you could get rid of that.”

In an uphill battle

After that I did things I wasn’t proud of, I saved up $300 and went to a hospital and paid cash for my visit to a specialist just so they could give me a prescription for a medicine that cost me $2,300 dollars. There was no way I could afford that. Well, years later I did get insurance and went to a dermatologist and it turns out I have been exposed to Hepatitis C (my dad had that and I used to use his shaving razors). Anyway, they gave me a prescription for Humira and it started to work, then about 5 months ago right after taking a dose, I caught pneumonia and I found myself battling pneumonia without an immune system and it almost cost me my life.

Struggling with psoriasis treatments

Needless to say, I pulled out of it but now my psoriasis is back with a vengeance. My dermatologist said they won’t give me any more biologics because of my pneumonia so I pretty much am stuck knowing this psoriasis will be the end of me.

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Comments

  • Rasha
    3 weeks ago

    I hear ya, Richard. My psoriasis started about 10 years ago, out of the blue, and just went to 11 in no time. I started with research and topical creams, and realized how uninformed questions like “Why don’t you get a job and get insurance so you could get rid of that.” really are. Like telling someone with a broken leg to “walk it off”, or a person with depression to “cheer up.”

    The only thing that brought improvement for me was Dr. John Pagano’s diet-based routine, coupled with Epsom salt baths and Aveeno Psoriasis moisturizer.

    Yes, I had to give up many wonderful foods and drinks, but there are other good things to have. Part of the theory is that in addition to leaving out certain foods and compounds, an acid/alkiline balance should be maintained. There’s a lot more, but my 3rd-degree burn looking legs and back are now pale pink. Still itchy and sometimes flaky, but I deal with those using the Epsom salts, Aveeno and Alka-Seltzer.

    I’ve accepted that I’ve probably got this for good, but I can manage it without taking down my entire immune system.

    We’re out there, and know what it feels like, physically and mentally.

  • CathyD moderator
    1 month ago

    Hey @richardnsocal,

    Thank you so much for sharing your story. I am so sorry to read about everything you have been through. From the extremely insensitive nurse to the pneumonia. What an awful lot to deal with.

    It sounds like you’re in a challenging situation with regards to treatment. Did your dermatologist offer you any other suggestions for managing your psoriasis? As I mentioned before, we are here to support you through this. If we can find any information for you please do let us know, and stop by anytime you need someone to lean on. Sending hugs! -Catherine, Community Moderator

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