What can I do?

By cbears

1 min read

I was diagnosed in 2015 when we moved in to our trailer. I have it on my elbows, legs, scalp and under my breast. It so hurts every where. I so hate it and at times I have wanted to end my life cause of the pains.

Trying treatments for psoriasis

I have tried so many creams and nothing at all helps it. I do think its in my water. My husband was in the hospital and almost died cause of this water he had c-diff. I do use baby oil but it's still there, it just makes it so it don't look bad. It don't matter what the weather is like as it never goes away. I have asked my doctor for some thing else and she wont do it. Just keeps telling me to use the creams I told her they are not working she only says I am sorry wow.

Considering a new doctor

I think it's about time for me to get a new dr. I think this water has nickle in it and I so cant have that in my body as i break out with nickle. I don't know for sure what this water has in it. But we so dont use it. But I have to use it to shower and wash clothes and dishes. So I so don't know what to do any more for this crap. It's very painful. I itch and itch and at times its all bloody. I just want to die. Wished I knew what to do but I don't any more.

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CathyD Moderator
Oh <inline-mention username="cbears" user-id="8538972"/>, I can hear how much pain and distress you are in with this. The itching and pain that comes along with psoriasis can be unbearable at times. It does sound like a new doctor is a good idea. You really deserve a chance at finding relief. Have you ever seen a dermatologist? They're often more knowledgeable about psoriasis and can also prescribe stronger treatments than a regular doctor can. Regarding the water - that's a tough situation. I wonder whether a shower filter might help? Obviously that wouldn't help with the clothes or dish washing, but maybe it might make showers a bit more bearable. Please keep us updated on how you're doing if you can, and remember that we're always here for you. You're not alone in this struggle. Sending lots of love your way 💖 -Catherine, Community Moderator
cbears Member
Hi Catherine.. Its just makes me so mad my Dr tells me I need to see a dermatologist but where I live the Dr has to call them to get me into one.. I have called so many of them and they all tell me my Dr. has to call to get me in.. I tell my Dr this for years. As he asks me if I have seen one. I then tell him he has to call one for me and he hasn't.. I go to him for my pains meds.. I cant go to other pain places as they dont take my insurance.. There are other pain places but I would have to travel like an hour or more away from where I am at...We cant afford doing that.. Plus I have been well kicked out of the pain places around my around.. They found some weed in me.. Darn pee tests. But weed does help me from time to time on my pains at times...We just got a new shower head and its to help filler the water but not sure its working.. But its only been a few weeks we had it too.. I will just keep calling my Dr. until he gets me appointment for a dermatologist.. I so try to be happy and all but once I start seeing people looking at my legs like I am a gross person I get dragged down on it.. Thanks so much for repling to me about this...
1. CathyD Moderator
 <inline-mention username="cbears" user-id="8538972"/>, goodness that is very frustrating! I'm not surprised this makes you mad. I wonder if you could book an appointment with your doctor and ask him to make the referral call whilst you're there? You shouldn't have to do that though. Is working with a different doctor possible? You must be so tired and frustrated by all of this. I can completely understand and empathise with feeling judged by other people. They can be incredibly cruel and insensitive. Please know that this community is here anytime you want to connect with others who truly understand. We're all here for you and there's absolutely no judgement here. Please keep us updated on how you're doing if you can. Hoping you can get the care and relief you deserve. Big hugs! -Catherine, Community Moderator
cbears Member
<inline-mention username="CathyD" user-id="3335781"/> thanks..I am not sure really how this place working I wrote but then I seen the next area for upload image and <inline-mention username="CathyD" user-id="3335781"/> mention someone..I hope I didnt lose what I already wrote to you..
1. CathyD Moderator
 Hi again, <inline-mention username="cbears" user-id="8538972"/>! Don't worry, I saw your comment 😊 The mention someone button enables you to tag other community members in your comment. This is optional, but when you tag someone they do get a notification, so it can help people see your reply. The upload image button is just if you want to add a photo to your post. Again, completely optional. Please feel free to reach out with any further questions or concerns. We're here to help! Warmly, -Catherine, Community Moderator
cbears Member
Well my Dr. I see works at two differnt places in Iowa and then over in in Ill. I see him at night and most offices are closed by the time I see him..But I see him in a few weeks I will tell him to call places for me the next day or his nurse can call..If they dont help me I am going to find a new dr..I do have 2 drs. and they both have given me other creams nothing changes..The dr. I see at night he gives me my pain meds..so if I cant get either one of them to help me with this it will be a new dr time..My day dr did tell me to go to a place for this but we cant go 4 hours away to see some one..She tells me they are the only ones around that do this..No they are not I have called a few and I need a drs calls..So I will call her and give her the number for the place that will see me...Man just so much run around any more..But thanks so much.. 
1. CathyD Moderator
 <inline-mention username="cbears" user-id="8538972"/>, I really feel for you. There shouldn't be this much hassle involved in you finding some relief. I'm sure you're exhausted by all of this (and that's on top of dealing with the psoriasis symptoms). Wishing you the very best for getting that referral. Please keep us posted, and do reach out here anytime you need support. Gentle hugs! -Catherine, Community Moderator
cbears Member
THANKS SO MUCH...I WILL KEEP YOU POSTED..
DianeT Moderator & Contributor
Hello <inline-mention username="cbears" user-id="8538972"/>, I so feel your pain on this. I am having the worst flare I have had in 20 years and no one can figure it out. I am seeing my 5th doctor next week. I am seeing 6. Long story short, I did have an infection that they thought was cleared up. They are doing other things to see what is going on. I am 70% covered with no relief in sight. So sorry you are going through this, but I know you will find a doctor to help soon. Let us know how you are doing. We are all in this together. Diane (Team Member)
cbears Member
Thanks.. I am thinking about heading to Iowa City to see if they can help me.. I am going to call them soon.. I so so hope they can help me with this stuff so hate this stuff.. I also have it on my head glad I have long hair as it covers it up.. I will so keep you guys posted.. Again Thanks..
DianeT Moderator & Contributor
Hello <inline-mention username="cbears" user-id="8538972"/> , I hope you find someone to help with this. It's no fun when you can't get it under control. Let us know how things go. I would love to know what treatment plan they put you on. I am also at a wit's end. Diane (Team Member)
cbears Member
I so will let you know...need to get appointment first with iowa city..but when i am dont there i will let you know..so hope they can help me...thanks again.