Why me?

50 years I’ve been dealing with psoriasis. I have been on so many different treatments that I can no longer keep count. I was sent home from school in second grade when the teacher thought I had measles. That’s when it started. I can still remember sitting at a desk in the hallway waiting for my dad to pick me up. I was told I was allergic to chocolate and peppermint sticks. I was told it was because I had to have my tonsils removed. The truth is back then they had no clue. I was wrapped in saran wrap for days at a time and still had to go to school. You can imagine the teasing I took most of my childhood. I was not allowed at the public pools or beaches. In short my life has sucked. But I was not prepared for what has come now–PSA. Aside from looking like a carnival side show I now feel like one. Walking like a 90 year old woman is not what I expected. I’m tired all the time because I can not sleep all night because the pain wakes me up. All I have left is to pray that some miracle drug comes out soon, to stop the pain. So when someone says they have psoriasis know that its more than just looking pretty. It’s survival. I would not wish this on my worst enemy. I often think. WHY ME?

This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The PlaquePsoriasis.com team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

Comments

View Comments (3)
  • RichardF moderator
    2 years ago

    Thanks for sharing your story boska. Sorry to hear that you have had these difficulties, but glad you are reaching out to a community for support and information.

    The emotional aspects of psoriasis can be overwhelming. This article from our editorial team looks at coping with these aspects of the condition: https://plaquepsoriasis.com/living-with-psoriasis/emotional-health-social-stigma/.

    Unfortunately psoriatic arthritis too often accompanies psoriasis. This article looks at the arthritis, with some tips: https://plaquepsoriasis.com/symptoms-affect-body/swolen-joints-pain/. In addition, we have new sister-site dedicated to psoriatic arthritis located at: https://psoriatic-arthritis.com/.

    I hope this information proves useful. Please keep us posted on how you are doing. If you haven’t already, you may also want to checkout the Facebook page at https://www.facebook.com/PlaquePsoriasisdotcom/. Best to you. Richard (PlaquePsoriasis.com Team)

  • CathyD moderator
    2 years ago

    Hi boska,

    Rebecca took the words out of my mouth – I found your story very moving and I am sorry you have had to go through what you have in your life. You are so right – psoriasis is so much more than what is immediately visible. I hope you will find this community a support.

    -Cathy

  • RebeccaB moderator
    2 years ago

    I know that we don’t know one another, but your story truly moved me. I can’t begin to understand how confusing and upsetting that must have been as a small child…having to go to school in saran wrap…not knowing what or why this was all happening to you, my heart goes out to you, boska.

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