Living with psoriasis.
Psoriasis can impact so many facets of day-to-day life. Truly, it can be a burden living with psoriasis.
How does psoriasis impact your life? What do you do to manage these impacts?
I always have fatigue. It rules my life. I work 8 hrs a day . During that day of work I sit maybe 30 minutes.
After work & errands/chores
I sit til I go2 bed.im to tired from physical work from work that I hurt all over. Ice helps
Stretching out helps some too
Hard getting in shape when your exausted most day
, the fatigue is really something else. I have suffered with this to the extreme over the years, so I can fully empathise. Mine didn't start until I developed psoriatic arthritis, but I know lots of people do get fatigue with their psoriasis. I definitely hear you on it being hard to get in shape with the exhaustion. Sometimes just meeting the basic needs of our bodies is more than we have the energy for. Are you on any treatments for your psoriasis at the moment? Sending gentle hugs! -Catherine, Community Moderator 
Ugh, I know this feeling all too well and I hate you have to always deal with relentless fatigue that never seems to end. It's a good thing that you stretch and are able to use ice. Anything that helps is a plus. Try not to put too much pressure on yourself about working out. Dealing with a lot and overcoming fatigue can almost seem impossible to do. Running errands and working long hours is definitely a workout within itself so give yourself grace. I hope you're able to get more down time soon so you can get the rest you need. Hang in there, Latoya (Team Member)
For me, the sensation is both irritation and itch. Both can drive me batty. Maybe even worse is the longterm and permanent skin damage from years of topical steroid (bad news!). But the newest, greatest topical — Zoryve – is helping immensely! 🥰
It’s great to hear Zoryve is making such a difference for you! (We love a success story here). How long did it take before you started noticing improvement? -Latoya (Team Member)
The Zoryve was prescribed with Tazorac (tazarotene, 0.1%) 4 months ago. Tazorac, a very strong retinoid, causes plaque surfaces to literally fall off, exposing base skin that can absorb the Zoryve. I only needed to use the Tazorac daily for less than one week as it cleared the dead surface skin very quickly. Now I only use it on the occasional new (tiny) plaque, which isn't very often anymore, because... Zoryve seems to be very effective (so far) at supressing plaque growth. I apply it once daily. Total clearance is about 95%, which is fantastic!
These are also NOT known to cause further skin thinning like steroids (triamcinolone and especially Clobetasol) which was a huge and permanent problem for me. So far, that seems to be true. The big question, of course: will Zoryve plus Tazorac continue to be as effective over the long run? So far, so good!
Another nice thing about Zoryve: it's a smooth, non-greasy, light cream that absorbs very quickly, so it is okay to use behind my ears and in my hairline, and sunscreen can be applied over it (but I wait at least 1/2 hour to make sure the Zoryve is fully absorbed).
The ONLY *BIG* downside is for patients with weak or no prescription insurance. Zoryve is a new-ish "consierge" drug and strictly under patent. There is no generic - and there won't be one for years to come, and it is not yet included in all coverage formularies. Its retail "rack" price is, therefore, really high, about $700 to $1000 per tube, depending on the pharmacy!! And any insurance coverages with co-pay limits will quickly max out. Expect a tube will last between one and four months, depending on how much area that it needs to treat.
Thanks for this in-depth review of your Zoryve and Tazorac combo! Lots of people come to the community looking for personal experiences with a particular medication, so this is super helpful. There is definitely some sticker shock there, but I'm glad you have access to it and down the road (however long that is) it will hopefully be more accessible to others. Fingers crossed. -Melissa, team member
