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Have You Tried Clinical Trials for Psoriasis?

I had the honor of being on a panel recently for clinical trials for psoriasis. I have been in several studies for this over the years. This group wanted to know what could they do to improve the way studies are done.

I feel that studies should be longer. I don't feel they give them time to work on psoriasis patients. If you feel that a drug is not safe, patients need to know that up-front. Are there any risks? This is just my opinion, but I believe there should be doctors involved in every step.

What do you think is the most important part of a clinical trial? Do you think trials are successful?

We would like to hear your thoughts on this.

  1. Hi I have been in only one clinical trials. I had great success with it. It was working for me. Unfortunately after 4 months the trial ended and that was the end of my clinical trial experience. All the points you made in your post are valid. With it working for me I would have loved to continue to be a part of it. I do not know if I will ever be in another one because the one I was in was a 3 hour drive from my home one way. Vickie W., Team Member

    1. Hello , My first clinical trial was when biologics first came out. Mind was for 4 months also. They stopped it abruptly and bam, I was covered from head to toe. It scared the heck out of me. I do believe in them, but we need to be more informed. Thanks for sharing.

      1. I think the ideal of clinical trials are a good idea. But the process itself can be much better. I haven't participated in a study personally, but I assisted my grandmother in one and from a family member perspective, it was a lot of information that wasn't as clearly explained. My grandmother has short term memory loss and was on the watch for dementia so dealing with that and the study was tough as her POA. From the outside looking it, I just expected a different experience overall and I do think if they gave it more time in the development stage as well as the watch phase for the participants it would have yield a more in-depth understanding how how certain drugs affect different people.

        1. Hello , I do believe that studies are good, we just need to know more about the side effects. You are right, we need more time to understand them and what they are doing to our bodies. Thanks for sharing.

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