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How do you manage your fatigue with psoriasis?

Psoriasis can cause fatigue in many ways. If you are affected by physical, social, and emotional fatigue because of your psoriasis, this is a space to share your experience with the community.
What causes your fatigue?
What helps with your fatigue?
We want to hear it all.

  1. I have some patches on my scalp where i can feel
    rough patches. My left knee has been very painful twice in the last month and I’m extremely tired when I wake up in the morning-I think I might be dealing with psoriatic arthritis. What should I do.

    1. Hi there! I'd chat with a dermatologist (skin) AS WELL WE a rheumatologist (Inflammatory diseases like arthritis), or see your general doctor for a referral. Be sure t make a list of all your symptoms and when they started. Self-advocate. Ask for blood work and xray of the knee.

      Get tested for HLA-B27 (Easy blood test). HLA B27 is a gene associated with psoriasis and weakly associated with peripheral psoriatic arthritis. In the presence of spondylitis-associated with psoriasis, 60-70% of these cases are HLA-B27 positive" You can still be negative for it but it's one helpful blood test.

    2. Hello , It's been a while since we heard from you. Did you ever get any relief from your pain? You could have had psoriasis or psoriatic arthritis, but you need to see someone in the healthcare field to make sure. Let us know how you are doing. We would love to hear from you. Diane (Team Member)

  2. Generally I try to get exercise daily (it may be slow and gentle, walking, dancing, etc), get out int the sun, eat greenery and drink water, and manage stress. But sometimes it has ALL the control. (I have arthritis as well).

    1. I am 47 years old, and was diagnosed with Psoriasis when I was 4, after several terrible bouts of stress-induced hives, the swelling settled down, the redness stayed, and started developing plaques. Over the years, it only got worse, but all my (many, many) doctors did was to prescribe topical hydrocortisone, some very smelly tar and or steroid treatments in creams, ointments, soaps, and shampoos. Only in the last 5 years, or so, after I joined a Facebook group for sufferers, did I finally begin amassing real and detailed information about my disease. This has been a time of learning for me, not only about the skin condition aspect of Psoriasis, but also because I find it is so much worse when I am under stress. I'm learning about myself so that I can set and maintain healthy boundaries in all areas of my life. This has changed everything. I work 4 days a week, instead of the 6 I used to. I do not ever work extra shifts or extra hours, and made sure that I entered my most recent job strictly as a disability hire, so that I am protected from being forced into any more work than I can handle. And yes, Autoimmune disorders do qualify as disabilities. I use my 1st of 3 days off to rest, and nothing but rest. Im sleeping, or relaxing, sometimes light stretching and easy yoga poses. Nothing strenuous. I turn the ringer off and the music on and just take that time to recharge. Both of these things have gone a long way toward changing how I manage my fatigue. Further, because I am no longer overdoing it on the job, I feel well enough to take much better care of my home, pets, and myself on a daily basis. This, in turn, makes me feel accomplished, which raises my self-esteem, promotes healthy dopamine production, which helps with the depression we so often face as another comorbidity of PsO. Fatigue and depression play off each other, so helping one, helps both. Ive learned, as a skills coach, that the 3 things nearly every patient deals with are:
      1. Positive Self Image,
      2. Perspective, and
      3. Boundaries
      Managing these three things has helped me in my own life to create a lifestyle, a routine, and an attitude that promote a healthy, happy way to live. Yes, I still get tired, but instead of beating myself up and feeling like Im lazy or useless, I now remind myself to change that perspective to: I have a disability and every single day I am up and living a strong and healthy life anyway, so if I need a nap or a "me day" in order to maintain, thats just what I'll do. I remind myself of all the positive moves Ive made and how far Ive come, and I remember the boundaries Ive set to ensure I dont take on too much, or become overwhelmed. All of these steps have allowed me to learn better time management, take excellent care of myself, and combat fatigue where it starts-- with me.

      1. thank you so much for sharing with us. I agree with everything you said and it is so important to be reminded to take care of ourselves. I am so glad you have been able to incorporate all of this into your life. We are so glad you are a part of our community. Jill, team member

      2. Hello , Just following up to see how you are doing. You shared so much knowledge with the community that we wanted to hear more. I also get PsO at a young age. I was 5 and will be 66 next month. I agree 100% we have to take care of ourselves.

        The one thing that has plagued me is having cormobilites. Have you had any other issues because of PsO and PsA? We would love to hear from you. Diane (Team Member)

    2. Rest when you can

      1. , yes! Resting is so important for us. Are you able to rest when you need to? I know it's not always possible. Hoping today is kind to you. Warmly, -Catherine, Community Moderator

      2. Hello , Thanks so much for sharing this. We forget how important rest is. In my 20's I would just go, go, go with my children and career. Then along came 6 grandkids and now a great-grandbaby. Nobody understands. I do try and sneak in naps when I can. Even if I can't sleep, I will rest.

        Is there anything special you do to sneak some rest in? We would love to hear from you. Diane (Team Member)

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