Will I Ever Be Loved With Severe Psoriasis?
This was a question that was asked by one of my support group members. What would you have told this person? As someone who has had visible severe PsO over half their life, I understand why this question was asked. I can't wait to hear your responses. Diane (Team Member)
To a large extent it would depend on the non psoriasis person's knowledge, outlook & awareness of the disease.
From a oersonal perspective, having a wife who's a registered nurse has made some aspects of managing 'our' disease much easier for me. Having said that, she is perplexed by the fact 'modern' medicine cannot provide us any long term relief i.e. there is currently no cure.
I would have to say I agree with you on the non psoriasis person's knowledge of psoriasis. My husband had a friend that had psoriasis so he gave me a chance because of what he knew based on what his friend had shared. I do agree with your wife also in that it is perplexing that we still do not have a cure all these years later. I am glad she has made your journey somewhat easier. Vickie W., Team Member Hello
, thanks for sharing this. When I met my husband he had never heard of psoriasis. I was over 80% covered. Thank God he fell in love with me and not my negative attitude at the time. But it's been 26 years later and he is my number one supporter. I don't understand why we don't have a cure yet. I am in year 61 and counting with PsO. Thank you for all the knowledge that you share. Diane (Team Member)
To a large extent it would depend on the non psoriasis person's knowledge, outlook & awareness of the disease.
From a oersonal perspective, having a wife who's a registered nurse has made some aspects of managing 'our' disease much easier for me. Having said that, she is perplexed by the fact 'modern' medicine cannot provide us any long term relief i.e. there is currently no cure.To a large extent it would depend on the non psoriasis person's knowledge, outlook & awareness of the disease.
From a oersonal perspective, having a wife who's a registered nurse has made some aspects of managing 'our' disease much easier for me. Having said that, she is perplexed by the fact 'modern' medicine cannot provide us any long term relief i.e. there is currently no cure.
Yes, it is possible to find and keep love with the right person. I broke out with guttate psoriasis from head to toe in 2022. I felt like a leper, and it lasted for months. I was hurting, itching, and burning and my attitude sometimes was not the best. Before I broke out I was in so much pain my hubby, Keith had to help me get dressed; I could not put on my shoes and socks. I had been married for 14 years at the time and my husband loved on me even more during that hard season of being diagnosed with Psoriasis and PsA and getting the proper meds. He has been my rock and always saw me for me, not my rash and aching joints. He helped me by rubbing me down with creams and salves and ran oatmeal baths for me so I could be more comfortable. He still does it now if I need it. True love is out there. Be encouraged.
how long have you been on Tremfya? Have you made mention to your doctor about the joint and tendon issue? Are you being seen by a dermatologist and rheumatologist? I realize it is 3 questions but just trying to help if we can. Vickie W., Team Member Hello
, Thanks for sharing your journey with us. Have you been diagnosed with psoriatic arthritis? I have been on 8 biologics and they don't help much with the PsA at all. Of course, we are all different. I would like to hear more. Diane (Team Member)
