Good morning. I was recently diagnosed with psoriasis. It has been getting worse since last November and is now pretty much all over my entire body. The itch is about to do me in. My dermatologist wants to put me on Skyrizi. I’m just waiting for all the insurance stuff you have to go through. Has anyone here been on Skyrizi and has it worked…any side effects. I pray something works for me because I feel like a freak when I go out. So happy to find this forum for others that are suffering from this horrible psoriasis.
Guess we’ll be going through it together. I’m nervous about it too. Don’t have any other health issues, and praying I don’t have any horrible side effects. Just found out a couple days ago that this medication has two injectables each time. UGH. I applied for the assistance program late yesterday. They send something to my doctor and said it will take about 5 to 7 days to get approval.
Just started with my first dose (2 injections = 1 dose) a month ago and I am nearly 100% clear! The only possible side effect (I say possible because it may not be skyrizi related) is a bit more vivid and active dreaming. Not a bad thing because they’re just average dreams, not nightmares. I love the feel of my smooth skin again! 🙂
Regarding insurance, mine didn’t cover the first dose but I was immediately enrolled in the Skyrizi Complete program and assigned a nurse ambassador who came to visit me in person. My first dose was completely free and they could not have made things any easier on me! I’ll post a link to pictures I uploaded below. I can’t say enough about this amazing new medication and I wish you all the same wonderful results!
Same! It’s been one month since my first Skyrizi injections (2 shots = 1 injection) and I saw results within days! Now I’m about 98% clear! @abbvie I want to meet the researchers who developed this amazing medication, but if I can’t, please thank them for me!!! ❤️
I am so relieved to hear from two people that have had such great results and the needle being so skinny is great news too. Thank you so much for replying. I’m feeling a lot more at ease now. The assist program got my application and what the doctor had to send them, so I should be getting an approval next week. I can’t wait to get my skin back!
Good luck to you Bailey and Gail! Please post updates. I’m anxious to hear how this works for others.
Tried posting a link to my pictures above but they don’t show. Going to try it again here:
Here’s my before and after. 😁 The before is from 4 years ago when my psoriasis was first triggered by strep throat. It’s gotten better and worse over the years but has never been this clear! Thank you again @abbvie! #psoriasis#skyrizipic.twitter.com/BtY6Rhc0Rr
The pictures are posted on Twitter and I copied the link to the tweet into my reply here.
My apologies in advance for my somewhat political twitter account name and avatar. I’m definitely not trying to be political here but the account info shows as part of the post and I couldn’t think of another way to get the pictures posted here.
Just wanted to give those newly diagnosed some hope, as I remember well the frustration and despair I felt when my dermatologist told me she could control it to a degree but there is no cure and I’d always have psoriasis. I cried myself to sleep for months. Those spots were over my ENTIRE body, except thankfully my face. I wore Long pants, long sleeves, and turtlenecks all year because people would be so freaked out by my skin, they’d literally jump and shreek when they saw me – and I live in south Florida! I stopped going to the gym, the beach, swimming, dating, and lots of other things I enjoyed. Thought my social life was over, and that’s not to mention the constant itching and ugly trail of flakes everywhere!
So… my point is don’t give up! Don’t despair! The skyrizi will hopefully work wonders for you! 🙂
Thank you so much. I’ll have to get a twitter account so I can post pictures. It’s all over my body, except face, also. Yes, the constant itching is what’s driving me crazy. All the creams just don’t help and I wake up during the night itching.
Wow! I really feel for you. 😔 I never paid much attention to the psoriasis medication commercials before I had it myself, but I vaguely remember not really getting what a big deal it was. I thought it was like having a little dandruff. Nope! Now I know it’s life-changing in so many ways. I can’t wait to see your “after” pictures! 😃
I was diagnosed with Psoriasis 11 months ago and things have accelerated unbelievably quickly. I can relate to those who say it changed their lives because it has totally screwed up mine. I’m a 67 year old who until this thing went off the charts used to work out every single day, now the burning pain or raw skin has taken that down to almost nothing. I’ve had frequent flare ups, particularly in the last 3 months. i’ve been approved for Skyrizzi but i have another complication that i have to get out of the way 1st. Good to see that people have had very positive results, i hope to experience the same.
Hi @fastone52, thank you for sharing part of your psoriasis journey with the community! I’m sorry that psoriasis has negatively impacted your life this much, it can be a huge adjustment going from relatively helathy to dealing with flare ups. I’m crossing my fingers that Skyrizi allows you to live more comfortably. I’ll be thinking of you! Take care, Sarah, PlaquePsoriasis.com Team Member
Hi @fastone52, That sounds frusturating, I’m sorry to hear you Otezla didn’t give you the results you were looking for. But, don’t lose hope, because that just may not be the best option for you. If you haven’t already, I would chat with your doctor about different treatment options. There are a lot out there, which is why important to talk to your doctor about another option. I hope you feel better soon!
If you’re using the app, below the tweet you should see a small arrow pointing up with a sort of line/half box thing underneath. Click on that and look for the “copy link” option. Then paste that link into your message here and it should show up like mine did.
It’s been nice connecting with you Bailey! 😁 I’m leaving early tomorrow for a long RV drive so I’m heading to bed now. I’ll check back tomorrow to see if you need any more help with posting a link to your tweet. Have a great night!
Thank you,I was also on Otezla for 5 months and unfortunately, it did absolutely nothing for me. Trying very hard to keep the glass half full as I believe that time spent being depressed could be much better used trying to do something better.