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Just diagnosed

  • By jetsers

    But after reading about the issue I have been experiencing symptoms for almost 18 years.

    Its good to know what is going on, but before it just seemed like oh its no big deal. This current flare up has been so bad I went to the doctor and got officially diagnosed.

    I am so ready for it to go into remission again. Its currently in 6 large areas on my scalp. But over the years I have had it on my legs, groin and elbows also. But this is the itchiest it has ever been.

    So I guess instead of just complaining I have some questions.
    1. how often can I use the t-gel shampoo?
    2. when using the t-gel should I discontinue my tea tree oil shampoo on alternate days?

    Thanks

    reply
  • By VickiN Moderator

    Hi @jetsers! I figured I would weigh in here because I use both T-gel and tea tree oil shampoo, lol. I use the T-gel about 2 times/week, which I think is what is recommended (don’t have my bottle infront of me). I do believe that if you’re new to T-gel they recommend you ease into it though (i.e. start with once every week or two weeks). I personally don’t use my tea tree oil shampoo on the same days I’m applying T-gel, just because I find the double action is irritating (both coal tar and tea tree oil can be pretty strong stuff).
    If you’re liking T-gel I would also personally recommend keeping an eye out for Denorex. It’s also a coal tar-based OTC shampoo, but it also has menthol, which has a great cooling sensation that temporarily relieves itching. I swap back and forth between T-gel and Denorex.
    Best wishes!
    -Victoria, Community Moderator

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  • By sandys5546

    Hi, I was diagnosed 2 months ago. Had a mosquito bite that itched so . bad that I scratched the skin off my leg and the place got infected. Went to Urgent Care and was told I had cellulitis and ringworm. Was given medicine for fungus which didn’t help
    Had an appointment with my dermatologist shortly after that and she said it was psoriasis. I was shocked and asked her ‘Can I get psoriasis at this age? I’m 72. She said you can get it at any age. Gave me antibiotic for the infected bug bite and steroid cream for psoriasis on legs and feet. Looked better the next day. She also told me to use Cerave lotion after bathing and it’s amazing. Makes my skin feel so much better.

    After researching psoriasis, I realize I must have had it for quite some time, but didn’t know what was wrong. Skin was more dry the past winter than ever, but thought it was due to cold weather and my age. Lotions did not help. Had cracked, dry skin on legs and feet. Scalp itched so bad, I was crazy. Thought it was hairspray build up on my scalp. Had a thin, flaky layer. Didn’t think it was dandruff because it was so fine. Not big flakes of dandruff. Tried rinsing my hair with baking soda to remove buildup, but it didn’t help. Now, I think it has been scalp psoriasis all along. Skin on my face has been so itchy and I have small bumps on my forehead and cheeks. Will have dermatologist check it when I see her again next month.

    Also think it is on the bottom of my feet and between my toes. Have dry, itchy skin there.

    Don’t like to complain because mine is so much milder than most people’s conditions that I read about. Hope and pray mine doesn’t get that bad andI pray for all the people suffering with this skin condition.

    I’ve learned a lot about psoriasis and the different types of teatment from these forums and facebook pages. Am thankful to people who share their stories to help others.

    reply
  • By sarahcoff Keymaster

    Hi Sandy,

    Thank you so much for sharing this. You’re allowed to complain and vent, no matter how mild or severe your psoriasis is. It affects many aspects of your life, and we’re always here to listen.

    I’m glad to hear that you have learned a lot from our site, and I hope you continue coming back from more info! Besides your feet and face feeling itchy, how are you feeling otherwise? – Best, Sarah, PlaquePsoriasis.com Team Member

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  • By sandys5546

    Thank you for your kind welcome. It’s good to know there’s a place to vent and also to learn about this disease. Other than my nephew, I don’t know of anyone else in my family who has this. I’m told it’s genetic. Maybe someone in my mother or father’s family had it also. I also have another genetic disease and know of no one in my family who has it. Hypertrophic cardiomyopathy.

    reply
    • By CathyD Moderator

      Hey @sandys5546, welcome! It is nice to connect with others who have psoriasis, isn’t it? For the longest time it was just me and my grandad who had it (although other family members have since shown signs over recent years).

      There is a genetic component to psoriasis; that along with environmental factors and immune system dysfunction are thought to play a role in why it develops. Something that I found interesting when I was first learning about psoriasis is that someone can have the gene (and pass it down) but not have any outward expression of it.

      I hadn’t heard of hypertrophic cardiomyopathy before. I am sorry that you have to deal with both that and psoriasis! Do you have to have regular checkups for the cardiomyopathy? -Catherine, Community Moderator

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  • By sandys5546

    Yes. Every 6 months. Have an ultrasound on my heart to determine if there are changes.
    It’s interesting that with each new diagnosis in my life that i’ Found a support group on Facebook. It’s helpful to hear other people’s stories and learn about treatment options.although sometimes it’s a little scary to hear the things orhers experience. Several years ago i was diagnosed with gastroparesis and learned so much from the support group. It’s better now and i think it’s due in part to the suggestions i heard from others. With each illness or disease, stress plays a part. I try to keep my stress level down but am evidently stressed more than i think.

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    • By CathyD Moderator

      I’m glad to hear that they’re keeping an eye on things for you, @sandys5546 🙂

      Yes, there appears to be a Facebook group for almost everything! If you like community suggestions you may enjoy browsing the “Your Community Recommendations” articles that one of our team puts together every so often: https://plaquepsoriasis.com/?s=your+community+recommendations

      Stress is a really big one for me too. It is difficult to keep on top of it sometimes :/ As Sarah said, we’re always here if you need support or a place to vent! -Catherine, Community Moderator

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