Which type(s) of psoriasis do you have?
While our community is called https://PlaquePsoriasis.com, we're here for everyone who is impacted by psoriasis - no matter what kind. I thought it might be interesting for us all to share which types of psoriasis we're dealing with.
For anyone who needs a refresher on the different types of psoriasis, the following article looks at plaque, guttate, inverse, pustular and erythrodermic: https://plaquepsoriasis.com/living/differences-between-types
Personally, I have plaque (including scalp psoriasis and plantar psoriasis), guttate and inverse. I also have nail psoriasis and a diagnosis of psoriatic arthritis.
Looking forward to hearing others' experiences!
Hello
, I started out with plaque, scalp, and nail psoriasis from the jump. ( years old) Erythodermic, guttate, and inverse didn't rear their ugly head until decades later. I started having symptoms of psoriatic arthritis at the age of 25 but didn't get diagnosis until I was 50. This is a gift that keeps on giving. , bless you. You have been through SO much with your psoriasis over the years. And your psoriatic arthritis. You are a constant source of inspiration for me (and I'm sure many people in the community). I can see from your other comment that you're having a rough time at the moment 😢 Sincerely hoping that everything calms down for you very soon. You deserve relief. Thank you so much for sharing here. Lots of love! 💖 -Catherine, Community Moderator
Sorry about the ‘late’ input, motivation issues…
I started with Plantar [hands] psoriasis when I was 20. A year later Inverse psoriasis in my genitals, also Plaque psoriasis. Psoriatic Arthritis started when I was 24 & remains predominantly in my SI joint.
During this period, several decades, I sought advice from eleven dermatologists, they were - struggling to proffer mitigating and or ameliorate strategies. One suggested, as a last resort, arsenic tablets…
When the Inverse psoriasis transitioned to my urethra I decided to [urgently] seek a Biological ‘path’, but Dermatologists cannot prescribe Biologics in Australia so I sought out a Rheumatologist. They wanted a ‘steady as she goes’ approach of Methotrexate & Sulphur tablets. Still on the former, the latter had to stop as urinating was another higher level of pain. Subsequently tried two TNF Alpha Biologics, plus MTX, no improvement, currently on MTX & Taltz nine months in and no discernible improvement.
I pointed out to one Dr we have no way, currently, of measuring pain in an accurate, consistent & reproducible way, even locating the source is a ‘hit & miss’ affair.
My Dr, I’m lucky in one sense, her son is a member of the ‘psoriasis team’, ‘skin in the game’ so to speak, she has had endeavoured to provide pain management starting with morphine patches, unfortunately they helped for approx. ten months, now on synthetic opioids, ibuprofen & paracetamol. This provides a modicum of pain suppression, I still urinate with trepidation…
I see my Rheumatologist in November this year when, according to him, ‘we’ll’ probably try a different Interleukin suppressor if Taltz continues to provide no improvement.
I was an Electrical Engineer before retiring that had transitioned into IT [Cisco certified] and I was - am watching with interest what AI can provide to us [psoriasis sufferers]. I hear the concerns, however those same concerns were raised when the first computers were commissioned all those years ago. Work being done in the gene ‘enhancing’ arena for cancer management, appears to have merit for us as well.Thank you for your response, these interactions do really help when your having a flare & you know only people like ourselves truly understand. Hello
, Oh, I get it. When I'm at my worst, I always say no one understands what I am going through. (especially family) We need communities that "get it". Thanks for being here.
Hello
, I am having so many emotions right now. First off, your journey is amazing. I have so much I want to say, but I am going to make this short. You talked about having this in the urethra. For a year I was telling my doctor something was going on with me. It was a visit to a kidney doctor that found out I had an infection. Fast forward to a year later. I had some tests done which came back abnormal. I go to a specialist for "down there" on July 11th. I am having the worst psoriasis flare in 20 years. I am on Methotrexate now also. Keep in touch and let us know how you are doing. Thanks for sharing. Diane (Team Member) 
When it comes to a disability support, there is part of me that does not want to admit the real impact of my PsA, plus I'm 'banking' on the Tremfya restoring some form of quality of life. I actually enjoy just staying at home listening to Christmas carols whilst helping with the meal preparations.
Both our parents have passed away, we do have two 'children', a 'boy' & 'girl'. They in turn have children, so typically they would visit us, however they are both, along with their families going away on holidays. There's nothing wrong with being - staying with your parents, I'm sure they enjoy the company - banter etc.. Historically we've had our son & family stay with us for a number months, primarily due to over extending themselves financially. I especially enjoyed bonding with their first child, at that point they only had one ( now they have three, all girls).
Kitchens are an important part of the house, so it should be conducive to cooking & sharing meals. Do you enjoy cooking?
If the mood takes me I enjoy cooking, however I've found out the hard you need a well stocked larder.
We have two dogs that really make the house 'homely' by their interactions & playfulness.
One is a Long Coat female German Shepherd (GS) who follows me around like a shadow, the other is a female Maltese terrier crossed with a King Charles spaniel. She follows (v closely) my wife, so it all balances out, there is three years between them so the GS thinks the other dog is her offspring, which leads to some v humorous interaction (play fighting etc.).
I try & take the GS out every night for a very slow walk of about 600 metres. If I take v slowly & gently all is good. If I over do it, my body tells me that night or next day. Going out at night (dark) is mainly due to difficulties I have walking properly. I feel v embarrassed... So dark nights are my saviour., I fully understand what you mean about disability. I actually went on the UK equivalent of disability for maybe six years because of my psoriatic arthritis. I should have applied much earlier though. Everyone around me couldn't understand why I didn't want to apply (another example of the fact that those who don't have it don't understand). You're right - applying is like facing/acknowledging just how severely affected we are. I found accepting my reality and applying for the benefits quite painful psychologically. I do sincerely hope that Tremfya will help you and make your life easier. Do you have a start date yet?
It sounds like you usually have a full house at Christmas with your children and grandchildren 🥰 Your dogs sound like they are adorable! I love that one follows you and the other your wife. It's lovely that you try to take the German Shepherd out with you every night. I'm sure it feels like you have a bit of moral support with you when you go out together. I know what you mean about overdoing it - our bodies will certainly let us know. Hopefully walking will be a bit more comfortable after a few weeks/months on Tremfya 🤞
I do enjoy cooking (although I don't have the imagination to make anything without following a recipe) but I find it too tiring to do regularly, especially in the evenings. I'm very lucky that my mum and sister cook our family evening meals. I don't know how I would cope if I had to cook every evening. I like making soups and I also usually make a Christmas cake or two every year, but that's on pause this year due to the kitchen arrangements! Do you and your wife cook the Christmas food together? I have to admit I was thinking about that all day yesterday - it sounds so delicious!! -Catherine, Community Moderator
P.s. sorry if there's lots of strange code in my reply - not sure what's going on there!
Right now I am using Triamcinolone Acetonide cream. It seems to be helping some, but very slowly. This is a prescription from my doctor.
