Five Pso advocates with multicolor conversation bubbles above their head.

Ask The Advocate: The Benefits of A Psoriasis Community

While each person’s psoriasis journey is different, and their psoriasis symptoms and treatment experiences may not be the same, there are frequently well-worn paths that are taken and common barriers that are encountered by people living with psoriasis.

Psoriasis is an autoimmune disease that causes chronic inflammation of the skin and other body parts and systems, currently, there is no cure. If you're looking for a community that understands, then look no further.

Advice from our advocates

When it comes to your health, you can be one of your best advocates. But when you’re in pain and coping with the emotional toll of psoriasis, it isn’t always easy to advocate for your own needs. We asked our advocates for their perspectives and for some words of wisdom when it comes to living with psoriasis.

Our question: What do you find most beneficial about being an advocate for the community?

Diane Talbert

I have had psoriasis for over 50 years, so I used to think I knew all there was to know about this disease. Absolutely, no way. Every time I go to the community there is always something new out there. Not to mention all the amazing questions that I would have never thought to ask.

I had to stop taking a biologic for a whole year and was about to lose it. I couldn't tell anyone I was falling apart, so every day I would visit this community. I learned about the latest home treatments and what people where doing naturally and what side effects people were having.

I even got tips on different exercises to do, what vitamins to take, and what foods to eat. This is the best community ever with great information. I only had to see a doctor once and that was for a follow-up. Everyone works together to help each other; emotionally, with sensitive issues and spiritual.

Jack Gevertz

The most beneficial thing I find in being an advocate for the PlaquePsoriasis community is being able to discuss and get out there what living with psoriasis is like, particularly as I’m young, what it’s like for a young person.

A lot has changed when it comes to living with psoriasis and treating psoriasis over the years, I feel privileged to be able to offer a young person’s perspective on it all and help other young folks who are dealing with this horrible disease. It can be proper fulfilling and uplifting.

Reena Ruparelia

Meeting other advocates and learning about their experiences. It’s validating and it gives me a sense of community. As someone who hid for years, it’s amazing to see how similar yet unique our experiences are!

Tikeyah Varner

I find being able to be open and inspire other people to be the best part about being an advocate for the community. Before I accepted this position, I wanted to share my story with other people living with this disease on a larger scale, but I was unsure of how to accomplish this.

Being an advocate has allowed me to reach so many people. Additionally, being an advocate helps me cope with my psoriasis because I am able to put my struggles with this disease into words and connect with those who share the same struggles. It is extremely therapeutic.

The benefits of a community

Do you find validation being a part of the psoriasis community? We want to hear your story.

Our collective voices have a huge impact, and we hope you will add your unique voice. The best part? Your journey living with psoriasis is all you need to get started!

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This article represents the opinions, thoughts, and experiences of the author; none of this content has been paid for by any advertiser. The team does not recommend or endorse any products or treatments discussed herein. Learn more about how we maintain editorial integrity here.

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